I read the email and felt the relief land—but it took a few minutes before my body caught up and tears welled up in my eyes.
Not because of bad news—but because we finally got the insurance estimate we’d been hoping for. All the work we’d done around Josie’s cochlear implant upgrade had paid off, and the relief caught me off guard.
It was the first moment of relief I’d felt in six weeks—and I could feel the wave pass through me. My shoulders dropped. My chest softened. My body released what it had been holding.
Because for a while there, it didn’t look like we’d get any coverage at all.
(Who knew you needed special insurance just to maintain hearing technology? It’s called DME coverage, in case you ever need to know.)
When a cochlear implant user needs an upgrade, it’s not optional. Technical support ends next year—a bit like needing an iPhone upgrade. But this isn’t about bells and whistles. It’s about her ability to navigate the world.
We’ve been working behind the scenes all summer trying to sort it out—calling, emailing, fuming, getting nowhere with the insurance broker who made a very expensive mistake and basically said "Sounds like a you problem."
I hate him.
It's the kind of mess that drains not just time and money—but mental energy, too.
And of course, this all happened to align with back-to-school season, which always requires extra advocacy for Josie.
It's a part-time job year-round—but come the start of school, it becomes full-time and my focus becomes staying regulated enough to navigate whatever’s next.
Layer that on top of a new para support schedule that didn’t offer the coverage Josie needed—and I was back in full mama warrior mode.
“
You don’t drown by falling into the water. You drown by staying there.
And it’s not just the logistics that wear me down—it’s the accumulation. The long-term toll of always being the one to push, to clarify, to ask for more.
Not in a dramatic way—just a true one.
It's also true that nothing about Josie’s path has been typical—not since she got sick.
And I’ve shaped our life around that truth. Quiet, slow, together. There’s no room for hustle—not because I’m bad at time management, but because my capacity is already spoken for.
By the time Josie’s para reached out the day before school started, asking how I was doing, the dust had just begun to settle. A simple question—but it landed in that in-between space where adrenaline begins to fade and the body finally starts to register all it’s been holding.
I told her I felt like the emotional wave of it all had passed.
Then, the email came. The one that confirmed: we’d made it through another storm. And only then did my body catch up. My nervous system finally got the message, and warrior mama mode powered down.
I had been floating above it all for weeks—now questioning if I came on too strong.
It got me wondering—how do I exist between pushing and surrender?
I'm learning it takes faith. Which, as someone who is spiritual but not religious, feels a little uncomfortable.
It also takes practice. And a whole lot of questioning whether I'm doing the right thing. Fortunately for me, life keeps handing me opportunities to practice. Yay!
And even though it’s hard, I’d do it all again for Josie—because that’s what love looks like in practice.
That part never changes—my love, my commitment—no matter how much I’m reshaped in the process.
PS: If you’re feeling stretched or quietly tired… you’re not alone. We’re doing the best we can inside systems that weren’t built for our kids—or for us.
Know someone navigating life with a child who doesn’t quite fit the mold? Send this their way. A small reminder that they’re seen, supported, and doing something incredibly important goes a long way.
Keep reading—there’s more below:
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Beautifully Honest | Bless the Messy is my favorite kind of colorful journal-style book. Jess Bird offers raw, relatable reflections on healing from trauma, breaking free from the roles we were handed, and learning to live more fully in your truth. She writes with honesty about coming out after marriage, ADHD , family trauma—all while unlearning who she was told to be. It’s not a how-to. It’s a me too.
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Thanks for reading this edition of The Art of Joy!
If you’re new here—hiya! I’m Lexis, the artist, designer + creative guide behind Lexisworks, Most Beautiful Design, and, of course, this newsletter.
My work—whether through design or creative workshops—is all about helping others express their unique brilliance with creativity + intention.
Every other Thursday, I share honest reflections + creative invitations to support your connection to your Creative Self to help you live with more joy, clarity + meaning.
I’d love for you to stick around.
4561 S Kalamath St. Englewood, CO 80110, US
Note: A few links in here are Amazon affiliate links—which means if you buy something, I make a teeny tiny commission. It’s a nice little bonus if you’re shopping on Amazon anyway. That said, I always suggest supporting small businesses when you can.